Within an hour of dropping my son off at junior kindergarten, I’m called to pick him up. The excitement of the first day of school quickly gives way to sadness and embarrassment. He was sitting on a chair in the office sucking his thumb while the secretary chastised him for misbehaving. I feel the need to chastise him, too; to signal we don’t condone whatever it is he did. But on the steps of the school after we leave the office, I kneel in front of him. I tell him he’s a wonderful boy. I promise him we’ll figure school out together.

It’s a promise I haven’t been able to keep.

My twin boys, now in Grade 5, have autism and complex needs. At one point, both of them were not attending school full-time because the public system does not support them.

These days, with one of my son’s schools, we’ve developed an “understanding.” I pick him up early. Sometimes earlier if I get the call. And I always get the call.

My body exists in a permanent state of readiness, waiting to be told my child is “having a hard day.” The euphemisms vary, but the message is always the same: get here. Every time I collect my boy, I see him as I did on that first day of JK: confused, overwhelmed, trying to comfort himself.

  • Bubbaonthebeach@lemmy.ca
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    3 days ago

    With so many children now requiring 1:1 teaching, how can our public schools system survive? Public schooling requires multiple, 15-20+, students to teacher to work financially. The general public cannot afford to spend an entire teachers salary for one child’s education. Teachers assistant’s are grossly underpaid to try to make that a workable solution. Not sure what the answer is but it isn’t dependency on the regular public school system to educate children who weren’t a consideration when the system was designed.

    • HellsBelle@sh.itjust.worksOP
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      It is up to the provincial government to properly fund the education of ALL children whether or not there are learning challenges or difficulties.

      If the provincial government doesn’t want to do its job properly they should step down from office.

      • Bubbaonthebeach@lemmy.ca
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        So instead if a public system that can work for a majority of students we have no system? Vouchers so students who don’t have issues will have private schools but that still won’t work for those who cannot navigate the current system?
        I know teachers who have quit because of problem students. It isn’t fair for them to have to work with a student who bites or punches them when they try to protect the rest of the students.
        I feel bad for parents who have a child, or more, who don’t fit in the mainstream education system, however trying to force them to fit isn’t helping anyone. The child isn’t learning and other children are having their education disrupted. We need real answers to the problem and integration doesn’t seem to be a workable solution.

        • dermanus@lemmy.ca
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          3 days ago

          Integration is such a manipulative term too, with the connotations with segregation. Special classes have their flaws, but the status quo is not working.

  • lobut@lemmy.ca
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    It breaks my heart. My nephews are on the spectrum and they’ve had these types of issues before.

  • Etterra@discuss.online
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    One of the numerous reasons I won’t have kids is that I don’t want the stress of having to browbeat school staff when/if my kid is bullied or otherwise mistreated either by staff or by kids while the staff does fuck all. I already lived that shit life, no need to inflict it on someone else or have to menace the education system into actually doing its fucking job.

    • jade52@lemmy.ca
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      Honestly same. Unless you come from a wealthy family and can afford the special care, which is just going to get more expensive. Gone are the days when people just had kids because “that’s what everyone does” and “you’ll just figure it out!”.

  • Zexks@lemmy.world
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    You never stated what it is they are doing that is being considered “misbehaving”. What are they doing that is requiring early pickup so often?

    • definitemaybe@lemmy.ca
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      No offense intended, but your comment is intensely ironic, and how common the mindset is that an autistic child is “misbehaving” is exactly the problem.

      The author’s children are routinely becoming dysregulated and are then no longer in control of their actions. That’s how “red zone” dysregulating is expressed. The child is a child and is not responsible for their dysregulation and resulting behavior.

      There are many possible solutions, but they are all upstream from the behaviour. “Behaviour is the symptom, not the problem” (Dr. Becky Kennedy).

      These children need support with dysregulating triggers: well-trained and present adults need to help identifying triggering stimulus. Sensory? Demands? Bodily needs? Emotional needs? Transitions? Then accommodations need to be made to keep triggers within the child’s ability to regulate.

      These children need support with co-regulation. A well regulated child can handle dysregulating triggers. When the child will be exposed to a dysregulating trigger that’s known in advance, like a transition or fire drill, then co-regulate ahead of time. And coregulation needs to be practiced, over and over again. It will take thousands of times co-regulating before they are able to self-regulate.

      These children need support with demands. As with all children, demands must be reasonable for their current abilities. This is as true for academics as for “life skills”. And, as with all children, when they are becoming dysregulated, demands need to be decreased, but often they are increased instead (asking them questions, telling them to do something, etc.)

      In the words of Dr. Ross Greene, “if you’re intervening after the behaviour, you’re late.” Focusing on “misbehaviour” misses the point completely.

      All children have a right to education, and many many autistic children in Canada are being denied access to education by a system that is systematically failing them.

    • k0e3@lemmy.ca
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      Does it really matter? Their kids have special needs that aren’t being met and I feel like they deserve the opportunity to succeed since the parent pays for education through taxes like any other Canadian. OP also doesn’t seem like they’re blaming the teachers either: just the system that they pay into is failing them.

      • Auli@lemmy.ca
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        If your child needs 1 on 1 attention public school is not for you. It sucks but their taxes don’t cover the teachers salary.

        • BillyTheKid2@lemmy.ca
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          They used to. I’m an old one but back in my day there was special education classes with instructors trained for this thing.

          Then one day they got rid of those special classes and integrated everybody into one.

          • definitemaybe@lemmy.ca
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            Radical inclusion was well intentioned, but it was terrible for so many students who need reduced demands and extra supports.

            But radical inclusion has staying power; it lets politicians virtue signal that they’re “being inclusive” while cutting costs and services. (And failing to meet their obligations to provide public education to every child.)

        • k0e3@lemmy.ca
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          It isn’t? My public school in Ottawa I went to had a class with specially trained teachers that took care of maybe 5-10 special needs kids. This was back in the the 90s.

          I live in Japan now and even they have special needs classes here, which surprised me because this country isn’t exactly known for its inclusivity.

        • Madzielle@lemmy.dbzer0.com
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          Im in the states, my son is in special education, a class of less than 10. What they do here, while not perfect and with flaws, is if a public school cannot support a child with an IEP they must use their own budget to send the child elsewhere, a place that can, out of district, its called. Again with class sizes less than ten, with usually about three to five adults, head teachers and rotating support workers. But the parents dont pay for this, the school district does.

  • Gmak2442@lemmy.ca
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    Even a normal kid can have bad luck and problem. But a autiste kid can have more bad luck I would say.

  • Rentlar@lemmy.ca
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    The thing is, with the amount of education funds available, the way how kids with special needs were able to school before was more or less to seperate them from the other kids, and operate their classroom more like a prison. Sending them to a combined class but ejecting them partway through the day almost every day seems no better for anyone.

  • TribblesBestFriend@startrek.website
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    It’s a fucking shame and it’s getting worst

    Even if schools want to do the good things (horizontale integrating all the actors in the life of kid) they don’t have the monetary support from their provincial gov to do so

    I’ve work with at risk kids (8 to 12 years old) in schools and each year I’ve had to argue that if we called low income parents to came take their kids we only teaching the kids that if they make a rumble they’re exempt of school which they loved and we putting parents in unsustainable positions. Fucking people with doctorate in education and management didn’t understand this

    • pack@sh.itjust.works
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      I’m in the states, but it’s the same here. Success and thriving is the autistic kid not being disruptive to their classmates. So for now, our kid is homeschooled. We’re lucky enough to not have to expose him to being overwhelmed 40 hours a week. Maybe he’ll try again in a few years, but for now, stay at home mom is killing it.

      Theres an impedance mismatch in expectations, I’m expecting my owed publicly provided education, but they are providing* trauma inducing childcare.

      That said, I get it. The school departments aren’t set up or funded for individualized education plans, if they were we’d be in a much better position. They are setup for take care of the fat part of the curve of students, and identify and neutralize disruptions. If classes were closer to a 1 to 5 ratio, if teachers were given more control, it could be different. If educators got more than a handful of 1 hour seminars on sped needs, pda, sensory issues, they would certainly handle it better.

      • grue@lemmy.world
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        I’m expecting my owed publicly provided education, but they are provide trauma inducing childcare.

        Holy shit, there’s a pull quote for ya! 😬

  • Glide@lemmy.ca
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    As someone in the school system, this is both true and heartbreaking. We simply do not have the correct supports in place to provide a safe environment for all students when studentswith complex needs are present, and it always comes down to the same thing: money. The personel isn’t there, the supervision isn’t there, the training isn’t there and the policy isn’t there. We need specialists. We need people attending to the complex needs. They cannot be a time-sink for classroom teachers, untrained in dealing with students with complex needs, who already have students fighting, stealing each others stuff and otherwise misbehaving. And when someone calls out, there needs to be a plan in place other than “call mom and tell them to come pick up their kid.”

    Smaller class sizes, having specialists available and in place, and clear policy are all required to give the students the inclusive environment they need without actively detreacting from, and in some cases even endangering, all children in the classroom. When one of the less well-behaved kids takes advantage of the classroom teachers attention being placed on the student with complex needs whose support staff called out sick and does something stupid resulting in harm to themselves, or others in the class, who do you think winds up with blame? Spoiler: it’s not the district, and it’s not the government.

    The whole issue breaks my heart, because the only winning move is “please stop under funding schools and passing the blame,” which falls on deaf ears, or worse, becomes a part of the “starve the beast” strategy pushing towards privatization.

  • the_armchair_potato@lemmy.world
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    Why does there seem to be so many more special needs children now compared to the 80’s and 90’s? Maybe society needs to accept the hard truth and address the cause as opposed to the symptom. Obviously the symptoms need to be addressed as well, but there is a fundamental flaw that is causing wide spread autism.